We are Thriving On, an organization built to provide financial support for adults battling pediatric forms of brain cancer.
Our dear friend Anne was diagnosed with a form of cancer most commonly found in children, medulloblastoma. Let that sink in for a moment: diagnosed with a kid’s cancer as an adult. The rallying cry for brain cancer awareness has become “Gray Matters” and this diagnosis was truly a deeply gray area. The support and funding dedicated to pediatric cancers is not designed to support adults with pediatric cancer.
This gray area creates many barriers to accessing new treatments, including emerging clinical trials, or finding financial assistance to obtain existing treatments. Our friend Anne was blessed with family and friends who were able to lend assistance whenever and wherever possible to make sure that she could access these life-extending treatments. Unfortunately, we know that this kind of support may not be a reality for other folks fighting in the gray.
In the spirit of shining light into the darkness, we want to provide financial assistance to folks that find themselves in this gray area: adults diagnosed with pediatric forms of brain cancer. To help these individuals thrive on a single ray of sun, that is, to work within the confines of the difficult diagnosis they are navigating and access the treatments that can improve their quality of life.
This could mean a lot of different things, but our hope is to write grants for qualified individuals, to help support them in their battle with pediatric brain cancer. Maybe that looks like a $1,000 to pay for travel expenses to get to a clinical trial. Maybe that looks like $500 to cover hotel stays during a bout of radiation therapy out of town. Maybe that looks like $2,000 to give you and your family an opportunity to travel somewhere warm when the bitter cold of treatments has rattled your bones.
2nd: Walela Nehanda
1st: Molly Oldham